Cross-posted at Cyborgology.
My post today comes from a class on ableism and disabled bodies that I taught earlier this past semester in my Social Problems course. Its inception came from the point at which I wanted to introduce my students to Donna Haraway’s concept of cyborgs, because I saw some useful connections between one and the other.
My angle was to begin with the idea of able-bodied society’s instinctive, gut-level sense of discomfort and fear regarding disabled bodies, which is outlined in disability studies scholar Fiona Kumari Campbell’s book Contours of Ableism. Briefly, Campbell distinguishes between disableism, which are the set of discriminatory ideas and practices that construct the world in such a way that it favors the able-bodied and marginalizes the disabled, andableism, which is the set of constructed meanings that set disabled bodies themselves apart as objects of distaste and discomfort. In this sense, disabled bodies are imbued with a kind of queerness – they are Other in the most physical sense, outside and beyond accepted norms, unknown and unknowable, uncontrollable, disturbing in how difficult they are to pin down. Campbell identifies this quality of unknowability and uncontainability as especially, viscerally horrifying.
Campbell connects more directly to Haraway’s cyborgs when she opens a discussion of biotechnology and disabled bodies:
The fortunes of techno-science continue to disrupt the fixity of defining disability and normalcy especially within the arenas of law and bioethics. Whilst anomalous bodies are undecidable in being open to endless and differing interpretations, an essentialised disabled body is subjected to constant deferral – standing in reserve, awaiting and escaping able(edness) through morphing technologies and as such exists in an ontologically tentative or provisional state.
Anomalous and disabled bodies are both unsettling to the able-bodied, therefore, because they implicitly lay open to question our assumptions about essential definitions of embodied humanity. Throw technology into the mix and the questions become even more explicit. What is human? What does human mean? And where is the line between organic human and machine – if there even is one? Haraway’s position is, of course, that there is no meaningful line, and that we are all, in some sense, cyborgs — that the relationship between the organic and the machine is so complex that it is no longer sensible to attempt to untangle it. And thanks to advances in prostheses and other biotechnologies, the boundary between “disabled” and “augmented” is becoming increasingly problematic, despite the essentializing power that the label of “disabled” contains.
In order to introduce my students to the ideas behind the relationship of different kinds of organic bodies to different kinds of technology, and how we culturally process those embodied relationships, I invited them to consider the cases of two amputee athletes, Aimee Mullins and Oscar Pistorius.
Mullins and Pistorius present interesting examples. They are both known for being both accomplished athletes and for being physically attractive – Mullins has done modeling work. They present inspiring stories that have generated a fair amount of sports media coverage. And yet things have not been altogether smooth – there has been some controversy regarding the degree to which the carbon fiber prostheses they use for running confer any form of advantage on the runners who use them. Questions over the effect of the prostheses have threatened Pistorius’s bids to compete in the Olympics alongside able-bodied athletes.
I think the combination of positive and negative reactions is worth noting, in light of Campbell’s writing on culture and disability. Mullins and Pistorius are admired for “overcoming” a perceived disability, and this admiration feels especially safe for people embedded in able-bodied culture because they are conventionally attractive in every other respect. But this is a story with which we only feel comfortable provided that it doesn’t present any kind of threat to our conventional categories of abled and disabled bodies. It is unacceptable for a disabled body to be better at what it does than an abled body. It is even slightly uncomfortable when a disabled body manages to be “just as good”.
After the images of Mullins and Pistorius, I also showed my students this image of speed skater Apollo Ohno. Like the images of Mullins and Pistorius, Ohno’s body is explicitly being presented here as an attractive object. By most standards, Ohno is as able-bodied as one can get. But as I pointed out to my students, he manages this on the back of technology – on specially designed skates, in special aerodynamic suits, with the help of carefully balanced exercise and nutrition plans; almost no athlete is really “natural” anymore. But at least in part because of the closeness of his body to an able-bodied ideal, this presents no explicit threat to our categories. Ohno fits the accepted model of “human”. Who would look at him and doubt it? And if Mullins and Pistorius are perhaps not as close to that ideal, they at least fall into line with it, by virtue of the fact that they don’t explicitly question its legitimacy as an ideal – unless they seek to transcend it.
My point, in short, is this: we are uncomfortable with disabled bodies that question or trouble our accepted, hierarchical categories of abled and disabled, of human and non-human, of organic and machine. We are far more comfortable with them when they perform in such a way that they reinforce the supremacy of those categories. They become acceptable to us.
Sarah Wanenchak is a PhD student at the University of Maryland, College Park. Her research focuses on contentious politics and communications technology in a global context. She has also worked on the place of culture in combat and warfare, including the role of video games in modern war and meaning-making. She is an occasional blogger at Cyborgology.
Comments 54
Yrro Simyarin — January 16, 2012
How do you square this line of reasoning with the ban of steroids and other performance enhancing drugs? What about corked bats? And there have been many discussions on the appropriate level of skates or swimsuits that should be allowed in these sorts of competitions.
The definition of "performance-enhancing" is plenty muddy to begin with. I'm not sure that you need to include systems of ableism to describe the strangeness going on here.
Anonymous — January 16, 2012
Makes me think of Goffman's phantom acceptance: normal people are keen on accepting stigmatized people as normal, but paradoxically only as long as the stigmatized people don't lay claim to full normalcy.
Blix — January 16, 2012
It would be one thing if these people weren't ATHLETES and then suddenly gained all sorts of advantages. These are athletes that train and discipline their bodies to reach levels of excellence-no different than any other. Besides, the body is simply a house for the soul-why does the shape matter if the person living within is a valuable human being?
-Created equal-
Pavlov's Cat — January 16, 2012
I can't make up my mind whether the top picture is an attempt to counter the tendency to ignore the sexuality of people with disabilities or an attempt to reduce a talented woman to a sex object and thus make the qualities people find threatening in her disappear. Or whether those are mutually exclusive things at all.
C. D. Leavitt — January 16, 2012
I find this a fundamentally dishonest way of approaching the issues of ableism. The examples used are of conventionally attractive, thin, young, white athletes who lack body parts rarely looked at or remarked upon except by foot fetishists, whose ability to interact with the able-bodied world is entirely dependent on actions taken on their parts (adapting to prosthetics) rather than any accommodations on the part of the able-bodied.
This is somewhat akin to "confronting" ableism with Deaf people who have had cochlear implants. All of the effort is on the part of the disabled, none on the part of the abled, and yet the abled then pat themselves on the back for "challenging" themselves.
Email — January 16, 2012
Oh my god what a ridiculous post.
Yes skates in a SKATING contest are like carbon fiber blades instead of lower legs in a RUNNING race so much that you can lazily equate them. And way to ignore the fact that carbon fiber blades that are an engineered product offer distinct advantages over human bone, muscle, sinew, etc., especially in sprinting where the articulation of the ankle and foot are quite inefficient. Plus legs are a lot heavier than carbon blades, muscle requires calories which carbon fiber does not, and muscle tires whereas carbon fiber does not, but that's not what this is about, this is about your masturbatory pet theory #275-E on how you can see society's failings where others cannot and therefore, put me in front of a classroom (poor kids).
And someone training their body specifically to compete in some sort of physical event is no longer "natural", because natural is a concept we get to throw around as an argument without even defining the concept.
Yes, the olympic committee not letting someone with carbon fiber lower legs compete in sprinting is because society at large wants to keep "disabled" in their place. That's also why they will someday ban a swimmer who doesn't have lower legs or forearms but instead articulated carbon-fiber flippers. And that day will give you the chance to again teach a bunch of impressionable freshman some really stupid things.
Some Guy — January 16, 2012
Interesting. I've tended to think that the segment of the public that has an "instinctive, gut-level sense of discomfort and fear regarding disabled bodies" were in most cases just responding viscerally to being confronted with a physical manifestation of possibilities they'd rather not imagine (and don't, most of the time). For example, if someone is afraid of getting into a car wreck (or whatever) and ending up in a wheelchair then it seems to follow that encountering people in wheelchairs would tend to bring that fear to the forefront of their consciousness since it's physical proof that it can happen to me, too!
I guess that would be an unusual or slightly twisted sense of empathy (ironically enough); a person made uncomfortable by someone else who has a disabled body is uncomfortable precisely because they implicitly acknowledge that the disabled individual is in fact a human being just like them, which then implicitly implies that they too can have their fears realized and become disabled. I'd be curious to hear how sociopaths or psychopaths generally respond to the same situation; since lacking empathy is a key characteristic of those pathologies, if my assumption is correct then sociopaths and psychopaths interacting with a disabled individual would not feel the slightest discomfort no matter how visual or severe the disability.
That might sound a bit simplistic, but ascribing too much nuanced complexity to the thought processes (or reactions, if thought is absent) of the general public so as to explain their responses seems a bit excessive when a simpler explanation can suffice: Assuming I'm an able-bodied person who desires to do certain things (and that I'm not a sociopath) and that those desires are at least partly based on my abilities, then being confronted with the undeniable fact that my abilities are subject to unpredictably changing to degree that makes my desires unattainable is going to bother me quite a bit if I lack the perspective that such is always the case for everyone (and I might even project that discomfort as prejudice against the individual who forced me to confront my fears, which is not a novel idea in other contexts). Well, it's a relatively simple thought process in practice but tricky to describe adequately.
Quoting the original post: It is unacceptable for a disabled body to be better at what it does than an abled body. It is even slightly uncomfortable when a disabled body manages to be “just as good”.
It is? I hadn't noticed. Or was the blogger only referring to her own thoughts/assumptions/projections? Some people probably feel that way, but that rather broad generalization strikes me as a projection of the author's beliefs more than anything else. If Mullins and Pistorius are not allowed to compete in the Olympics or whatever then it might be because those who make the rules perceive them as being incomparable to athletes that don't use carbon-fiber prosthetic legs; it may just be an apples-and-oranges problem rather than one of prejudice (and therefore is a totally separate issue from the visceral reaction the post was about), but I don't make those rules so I don't know.
Anonymous — January 17, 2012
It further muddies the issue that "able-bodied" often has nothing to do with actual ability and these athletes are a prime example. In what possible sense can these people even be considered disabled?
Endurance running is a big part of what makes us human, having contributed to so much of what we are today and being a physical ability that we, in all the animal kingdom, are uniquely good at, yet most people in the industrialized world today cannot even run 5k without stopping. Clearly it is people such as that who should be consider "disabled" if the word has any meaning at all, regardless of what sort of body parts one has.
Yet in order to feel better about their own physical inadequacies, people like to think of themselves as "able-bodied" just because they aren't missing any limbs or major senses that they never use to their full potential anyway.
[M]etabrain [E]ntry [L]og » Blog Archive » Becoming a cyborg — January 17, 2012
[...] Nina Cary, a great short post on disabled bodies and ableist acceptance that makes me go damn [...]
Kassieleelove — January 17, 2012
As a disabled (legally blind) person, I can find a lot of truth in this post. After finishing grad school I founded the blog Labelosophy (http://www.labelosophy.com) for those living with disabilities. I've gone through the last few years fo my life realizing that people are surprised at my education level and attractiveness considering my disability.
I have even found that new male friends are sometimes unsettled at the prospect of being attracted to a labeled disabled person.
Further, i have a fiance with an invisible disability of terminal cancer. He runs circles still at employees at work.
It does seem that non-disabled people are unsettled at the prospect of a supposed subpar group out doing them at times. This does not mean to say that unsettled equates to being upset, jealous, or angry. I think all humans are jarred when any paradigm is upset. This means you must form a new paradigm--so you must re-evaluate your previous conceptions about what disabled means.
It seems that the overall point of this article outlined that technology and the evolving comfort in disabled bodies is bringing about a paradigm shift. Now the challenge is to decide how the world will view "disabled" bodies.
Kassieleelove — January 17, 2012
As a disabled (legally blind) person, I can find a lot of truth in this post. After finishing grad school I founded the blog Labelosophy (http://www.labelosophy.com) for those living with disabilities. I've gone through the last few years fo my life realizing that people are surprised at my education level and attractiveness considering my disability.
I have even found that new male friends are sometimes unsettled at the prospect of being attracted to a labeled disabled person.
Further, i have a fiance with an invisible disability of terminal cancer. He runs circles still at employees at work.
It does seem that non-disabled people are unsettled at the prospect of a supposed subpar group out doing them at times. This does not mean to say that unsettled equates to being upset, jealous, or angry. I think all humans are jarred when any paradigm is upset. This means you must form a new paradigm--so you must re-evaluate your previous conceptions about what disabled means.
It seems that the overall point of this article outlined that technology and the evolving comfort in disabled bodies is bringing about a paradigm shift. Now the challenge is to decide how the world will view "disabled" bodies.
Kassieleelove — January 17, 2012
As a disabled (legally blind) person, I can find a lot of truth in this post. After finishing grad school I founded the blog Labelosophy (http://www.labelosophy.com) for those living with disabilities. I've gone through the last few years fo my life realizing that people are surprised at my education level and attractiveness considering my disability.
I have even found that new male friends are sometimes unsettled at the prospect of being attracted to a labeled disabled person.
Further, i have a fiance with an invisible disability of terminal cancer. He runs circles still at employees at work.
It does seem that non-disabled people are unsettled at the prospect of a supposed subpar group out doing them at times. This does not mean to say that unsettled equates to being upset, jealous, or angry. I think all humans are jarred when any paradigm is upset. This means you must form a new paradigm--so you must re-evaluate your previous conceptions about what disabled means.
It seems that the overall point of this article outlined that technology and the evolving comfort in disabled bodies is bringing about a paradigm shift. Now the challenge is to decide how the world will view "disabled" bodies.
Kassie Love — January 17, 2012
As a disabled (legally blind) person, I can find a lot of truth in this post. After finishing grad school I founded the blog Labelosophy (http://www.labelosophy.com) for those living with disabilities. I've gone through the last few years fo my life realizing that people are surprised at my education level and attractiveness considering my disability.
I have even found that new male friends are sometimes unsettled at the prospect of being attracted to a labeled disabled person.
Further, i have a fiance with an invisible disability of terminal cancer. He runs circles still at employees at work.
It does seem that non-disabled people are unsettled at the prospect of a supposed subpar group out doing them at times. This does not mean to say that unsettled equates to being upset, jealous, or angry. I think all humans are jarred when any paradigm is upset. This means you must form a new paradigm--so you must re-evaluate your previous conceptions about what disabled means.
It seems that the overall point of this article outlined that technology and the evolving comfort in disabled bodies is bringing about a paradigm shift. Now the challenge is to decide how the world will view "disabled" bodies.
Kassie Love — January 17, 2012
As a disabled (legally blind) person, I can find a lot of truth in this post. After finishing grad school I founded the blog Labelosophy (http://www.labelosophy.com) for those living with disabilities. I've gone through the last few years fo my life realizing that people are surprised at my education level and attractiveness considering my disability.
I have even found that new male friends are sometimes unsettled at the prospect of being attracted to a labeled disabled person.
Further, i have a fiance with an invisible disability of terminal cancer. He runs circles still at employees at work.
It does seem that non-disabled people are unsettled at the prospect of a supposed subpar group out doing them at times. This does not mean to say that unsettled equates to being upset, jealous, or angry. I think all humans are jarred when any paradigm is upset. This means you must form a new paradigm--so you must re-evaluate your previous conceptions about what disabled means.
It seems that the overall point of this article outlined that technology and the evolving comfort in disabled bodies is bringing about a paradigm shift. Now the challenge is to decide how the world will view "disabled" bodies.
Kassie Love — January 22, 2012
I think the commentary here arguing whether carbon fiber legs should be allowed in the Olympics is interesting. I don't believe there are rules prohibiting those with "replacement" body parts on the inside, such as knee replacements or metal rods.
This is not to say that I feel it is right (or wrong) for this disabled group to compete alongisde those with "ordinary" legs. I think if such a question were examined a hundred years ago, from the aspect of allowing someone with a knee replacement to compete, this debate would be just as fierce.
I believe the author of this article is more so making this same point, rather than advocate for the use of prosthesis in the Olympics. It takes society a long time to put novel concepts into perspective, especially when that concept relates to views of their own human body.
At my blog about living with a disability (http://www.labelosophy.coM_) I often address issues which consider the way society views disability. As "what it means" to be labeled disabled evolves, so will the opinions of society.
Melonary — January 23, 2012
"
In this sense, disabled bodies are imbued with a kind of queerness – they are Other in the most physical sense, outside and beyond accepted norms, unknown and unknowable, uncontrollable, disturbing in how difficult they are to pin down."
I'm really uncomfortable with the use of the word queerness as a way of literally expressing Otherness. Ironically enough, it's very Othering to the lbgt/queer community - our words do not exist and have not been reclaimed for the purpose of academic language.
Sivequi — February 15, 2012
How do you think this would apply to technology that allows people with dyslexia and other neurological differences to compete with and even outperform classmates on academic tasks? Is is fair if one person hears a test, while the other reads it? Is it fair to have a test biased to a skill some can perform, and others cannot?
Hana Grygarova — April 5, 2013
I see some people have problems with presenting "beatifull only" PWD. I don't. Sorry, If I was surrounded by this as a teen, maybe my ignorant classmates would be... less horrible. These images just show me more possobilities to have, than just sit and stare at the wall, which is more or less expected from PWD in my country.