A few days ago, Juliano Pinto kicked off the World Cup with a first kick. It was a media stunt designed to make us verklempt. Pinto is a paraplegic who wore a mind-controlled robotic exoskeleton to make his move.
We were to be awed by the technology, too, of course, which is being developed by the Walk Again Project, a scientific consortium. Says the leading scientist on the project, “With enough political will and investment, we could make wheelchairs obsolete.”
Red Nicholson isn’t having it.
Ask any wheelchair user, particularly one who’s been in the game a while, and they’ll tell you that they’re far too busy living their life to sit there worrying about whether or not they’ll ever walk. We just get on and do.
From his point of view, the exoskeleton is for people who aren’t in wheelchairs. Getting “non-walkers to walk again,” he says, is about making everyone else happy. As for him, he says, he’s fine:
My wheelchair is a very capable tool and to be honest, the last thing I want is to be strapped to a District 9-esque robot and become a puppet in some corporation’s half-baked execution of an obsession…
In the meantime, he says, everyone’s concern with getting him to walk again suggests that he, and everyone else who uses a wheelchair, is living a pitiable life. “These stories,” he says, “are unwittingly invalidating a unique way of life for millions of people around the globe who are really happy with their wheelchairs.” So, he goes on record: “This is not my dream.”
William Peace, an anthropologist who also uses a wheelchair, goes further, arguing that the exoskeleton is harmful to people who are newly paralyzed. The scientists developing the exoskeleton are “sell[ing] the dream of walking to newly paralyzed people who cannot imagine life as a wheelchair user.” This is bad, he says, because it encourages people to reject their new body instead of accept it. He writes: “the exoskeleton is symbolically and practically destructive to a newly paralyzed person.”
Instead of focusing on the one thing people using wheelchairs can’t do, Peace argues, we should focus on all the things they do everyday:
Work, make a decent living, and be autonomous. Own a home even. Have a family. Get married. In short, be ordinary. Walking is simply not required for all this nor should it be glorified.
Nicholson concurs: “My life as a wheelchair-user is a very good one.”
So hey, able-bodied media: quit making me feel like wheelchairs are a shitty, sub-par option. Stop beating your exoskeleton drum. And most of all, let go of your obsession with walking, because it’s totally overrated.
Cross-posted at Pacific Standard.
Lisa Wade, PhD is an Associate Professor at Tulane University. She is the author of American Hookup, a book about college sexual culture; a textbook about gender; and a forthcoming introductory text: Terrible Magnificent Sociology. You can follow her on Twitter and Instagram.
Comments 34
Gomiville — June 16, 2014
My father-in-law had Kennedy's Disease, which means by the end of his (relatively short) life, he was barely able to walk, couldn't handle stairs, couldn't pick himself up off the floor and more. My son has it too, though onset won't be until at least puberty, if not later, and the full decline can take decades.
And, while there are gene therapies coming down the pike, technology just like this exoskeleton has always been my fallback hope. Not because I can't imagine him not being able to walk, but because I know my FIL felt trapped and betrayed by his body, and I don't want that for my son. My FIL was a professional chef, and couldn't be in the kitchen anymore, because lifting pans and extended knife work was too exhausting, if not actually impossible because of his reduced strength.
There's more than just the promise of walking behind this technology. There's being able to move when your body just can't. Just move. Continuing to participate in the physical environment you might have able to use before.
I can't help but feel there's a certain privilege being expressed by the people quoted in the blog post. Sure, the media might be ableist, but they seem kind of semi-ableist too, making the assumption that being in a wheelchair is the great problem being solved by this technology. It goes way beyond that. That they're happy with their wheelchairs doesn't mean this technology shouldn't be celebrated for those with less ability than they.
Larry Charles Wilson — June 16, 2014
To each their own
Japaniard — June 16, 2014
As an able-bodied person, I would say that just about the very first "thing I want is to be strapped to a District 9-esque robot" so I can be a real life Iron Man.
Isn't most of the funding/applications for exoskeletons to allow the military to carry more/heavier gear anyway? People who are paralyzed were never the primary demographic for this technology, so it seems strange to imply that the "able-bodied media" is "beating their exoskeleton drum" due to an "obsession with walking" when this tech is mainly being envisioned as an Elysium-style strength enhancer, like this product currently on the market:
http://www.gizmag.com/panasonic-power-loader-light-exoskeleton/25682/
I can understand why tech demonstrations use paralyzed people (showing limb strength output increase from 0 to 100 is more visually dramatic than showing it increase from 100 to 200), but once widely available Alien-style power movers are going to be primarily used by able-bodied people.
Taylor B — June 16, 2014
While these opinions aren't wrong and definitely contribute to the "pitiable state" mindset regarding disabled persons, I think there's another, more practical reason. Accommodating wheelchairs for entrances/exits or public transit is costly and requires additional equipment or planning. If they became commercially viable, there would certainly be pressure to use an exoskeleton instead of wheelchair because of those considerations. It would certainly be easier to get disabled people to conform than to build an infrastructure to accommodate. However, I see disabled people use public transit and can only imagine the difficulty of getting around without a car as a wheelchair-using person despite the enhanced services. Infrastructure will never be totally accommodating to disabled people because of the additional resources and planning needed, which is hard to sell generally, not to mention the general economic climate. The debate is reminiscent of the controversy surrounding cochlear implants in the deaf community, since there are staunch defenders and those who see it as a great advance. Such advances in biotechnology straddle the line between offering an alternative and condemning those who don't conform by partaking.
Yrro Simyarin — June 16, 2014
I get the idea of acceptance, and of false hope. But, seriously? We might as well stop the idea of gyms and just say people should be happy to live as weak and slow.
Yes, it in no way diminishes your worth as a human being, or prevents you from living a happy life. Your worth is based on your mind and your soul, and you happiness is based on your internal peace. But being a stronger version of you is still objectively better than being a weaker version of you. If you gave me the option to be able to fly, for all that that would be almost entirely useless for my daily life, I'd still jump at it.
Being able to walk is super convenient, especially if your interests lie more in the realm of sailing, hiking, or playing football rather than being a university professor. Is a life without those things a sad, worthless life to be pitied? Hell no! But it's not like it's better, either, just different. Identity shouldn't get in the way of expanding those options.
Stef — June 16, 2014
Some people appear to believe that exoskeletons will take care of anyone who has trouble walking using their own body, and therefore society could stop making the infrastructure accessible to wheelchairs. Does that mean we are going to give exoskeletons to people who have balance problems? How about to infants and toddlers, who are currently transported in strollers?
Exoskeletons seem to make people wider. That creates an infrastructure challenge too. Are seats everywhere going to be revamped to make room for people wearing exoskeletons to sit down?
Von — June 17, 2014
Ridiculous question. Of course walking is not over-rated. It's great if you can do it and if you can't let's get on with what we can do. Very disabalist!!!
kieron George — June 17, 2014
That's ridiculous. Exoskeletons for walking aren't belittling wheelchair users way of life any more than that exoskeleton that gives people an extra set of hands and arms is belittling people with two arms.
Is Walking Overrated? | NYC Startup News — June 19, 2014
[…] Via: Is Walking Overrated? […]
The Morning Memo » Friday | Short roundups on news, tech and business — June 20, 2014
[…] to walk again,” says Red Nicholson, a wheelchair user who ran a blog called Walking Is Overrated, is about making everyone else happy.” (The Society […]
End Times Prophecy Headlines: June 20, 2014 | End Times Prophecy Report — June 20, 2014
[…] Is Walking Overrated? […]