{"id":782,"date":"2015-09-21T19:30:19","date_gmt":"2015-09-21T19:30:19","guid":{"rendered":"http:\/\/thesocietypages.org\/trot\/?p=782"},"modified":"2015-10-13T18:56:21","modified_gmt":"2015-10-13T18:56:21","slug":"the-social-life-of-autism-and-asd","status":"publish","type":"post","link":"https:\/\/thesocietypages.org\/trot\/2015\/09\/21\/the-social-life-of-autism-and-asd\/","title":{"rendered":"The Social Life of Autism and ASD"},"content":{"rendered":"<figure id=\"attachment_783\" aria-describedby=\"caption-attachment-783\" style=\"width: 395px\" class=\"wp-caption aligncenter\"><a href=\"https:\/\/flic.kr\/p\/95h8gu\"><img loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-783\" src=\"https:\/\/thesocietypages.org\/trot\/files\/2015\/09\/5299266366_0b6c8ae172_o.jpg\" alt=\"Hepingting, Flickr CC\" width=\"395\" height=\"304\" srcset=\"https:\/\/thesocietypages.org\/trot\/files\/2015\/09\/5299266366_0b6c8ae172_o.jpg 395w, https:\/\/thesocietypages.org\/trot\/files\/2015\/09\/5299266366_0b6c8ae172_o-300x231.jpg 300w\" sizes=\"auto, (max-width: 395px) 100vw, 395px\" \/><\/a><figcaption id=\"caption-attachment-783\" class=\"wp-caption-text\">Hepingting, Flickr CC<\/figcaption><\/figure>\n<p><a href=\"https:\/\/www.autismspeaks.org\/what-autism\">Autism and Autism Spectrum Disorder (ASD)<\/a> are the umbrella terms for a broad range of complex disorders of brain development. They have been the center of national concern <a href=\"http:\/\/www.washingtonpost.com\/news\/morning-mix\/wp\/2015\/09\/17\/the-gops-dangerous-debate-on-vaccines-and-autism\/\">and even political debate<\/a> as diagnoses become more frequent. Since the symptoms of autism and ASD are based on a range of behavioral indicators, diagnosis is not straightforward. Instead, ASD is a clear example of how social factors shape the way we understand disease and medicine. The cause of autism remains unknown, but diagnosis has risen with changes in diagnostic criteria, increased awareness, and more reliance on families for treatment.<\/p>\n<h5>Gil Eyal argues that autism was a rare disorder in the era of mental institutions, where children were simply deemed \u201cmentally retarded\u201d and separated from families. Changes since the \u201870s have meant mental healthcare is no longer mostly addressed in large, hospital-like institutions, but through a network of local therapeutic services that have created new opportunities for parents to interact with therapists and take part in diagnosis and treatment. This new social arrangement has increased practitioners\u2019 trust in parents\u2019 experiences and helped create a new category of mental illness.<\/h5>\n<ul>\n<li><a href=\"http:\/\/sociology.columbia.edu\/node\/65\">Gil Eyal<\/a>. 2014. \u201c<a href=\"http:\/\/www.jstor.org\/stable\/10.1086\/668448?seq=1#page_scan_tab_contents\">For a Sociology of Expertise: The Social Origins of the Autism Epidemic.<\/a>\u201d <em>American Journal of Sociology<\/em>. 118(4): 863-907.<\/li>\n<\/ul>\n<h5>Increased visibility and information about autism comes with more and more diagnosed cases. Parents have become \u201cexperts\u201d at identifying symptoms of autism in their own children when they see other kids with a diagnosis. Thus children living in wealthy communities or very close to a child diagnosed with autism are more likely to be diagnosed with autism or ASD. Children can&#8217;t &#8220;catch&#8221; autism, but the diffusion of information about symptoms through social networks increases the chances of diagnosis.<\/h5>\n<ul>\n<li><a href=\"http:\/\/som.yale.edu\/marissa-d-king\">Marissa King<\/a> and <a href=\"http:\/\/sociology.columbia.edu\/node\/66\">Peter S. Bearman<\/a>. 2011. \u201c<a href=\"http:\/\/www.ncbi.nlm.nih.gov\/pmc\/articles\/PMC3086778\/\">Socioeconomic Status and the Increased Prevalence of Autism in California<\/a>.\u201d <em>American Sociological Review<\/em>. 76(2): 320-346.<\/li>\n<li><a href=\"http:\/\/www.sociology.ucla.edu\/faculty\/ka-yuet-liu\">Ka-Yuet Liu<\/a>, Marissa King, Peter S. Bearman. 2010. \u201c<a href=\"http:\/\/www.ncbi.nlm.nih.gov\/pmc\/articles\/PMC2927813\/\">Social Influence and the Autism Epidemic<\/a>.\u201d <em>American Journal of Sociology<\/em>. 115(5): 1387-1434.<\/li>\n<\/ul>\n<h5>The ambiguity of identifying, diagnosing, and treating autism often takes a toll on parents. As if on a perpetual rollercoaster, they feel stressed not knowing what to expect from a child\u2019s day-to-day behavior. Mothers sometimes blame themselves for their child\u2019s disorder.<\/h5>\n<blockquote><p>\u2026mothers were experiencing feelings associated with ambiguous loss [which] revealed frequent expressions of conflicting or contradictory emotions and ideas about the child and about ASDs, confusion about the child\u2019s and their own future, and alterations between hope and hopelessness, feeling in control and feeling helpless. (O\u2019Brien 140)<\/p><\/blockquote>\n<ul>\n<li><a href=\"http:\/\/www.uncg.edu\/hdf\/facultystaff\/OBrien\/OBrien.html\">Marion O\u2019Brien<\/a>. 2007. \u201c<a href=\"http:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/j.1741-3729.2007.00447.x\/abstract\">Loss in Families of Children with Autism Spectrum Disorder<\/a>.\u201d <em>Family Relations<\/em>. 56(2): 135-146.<\/li>\n<\/ul>\n<h5>Although genetic studies of autism are inconclusive, genetic testing for autism in embryos is\u00a0often framed as essential for responsible parenting. As a result, mothers carry great responsibility for birthing children with autism and risk considering their children &#8220;disabled&#8221; before they even enter the world. Much of the autism and ASD advocacy revolves around curing autism, rather than promoting the well-being of affected families and children, and this marginalizes autistic individuals by presuming that genetic material measures a person&#8217;s potential value to society by indicating whether they are \u201cnormal\u201d or \u201cdisabled.\u201d Not all people with autism appreciate the framing of autism as a disease that needs a cure, and instead these people advocate for respect of neurodiversity.<\/h5>\n<ul>\n<li><a href=\"https:\/\/www.amherst.edu\/people\/facstaff\/kbumiller%255D\">Kristin Bumiller<\/a>. 2009. \u201c<a href=\"http:\/\/www.jstor.org\/stable\/10.1086\/597130?seq=1#page_scan_tab_contents\">Geneticization of Autism: From New Reproductive Technologies to the Conception of Genetic Normalcy<\/a>.\u201d <em>Signs<\/em>. 34(4): 875-899.<\/li>\n<\/ul>\n<p>For more, see &#8220;<a href=\"https:\/\/thesocietypages.org\/discoveries\/2014\/01\/29\/learning-to-see-the-spectrum\/\">Learning to See the Spectrum<\/a>,&#8221; about Eyal&#8217;s <em>AJS<\/em> article and Girl w\/ Pen&#8217;s\u00a0&#8220;<a href=\"https:\/\/thesocietypages.org\/girlwpen\/2011\/04\/19\/body-language-autism-and-neurodiversity\/\">Autism and Neurodiversity<\/a>.&#8221;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Autism and Autism Spectrum Disorder (ASD) are the umbrella terms for a broad range of complex disorders of brain development. They have been the center of national concern and even political debate as diagnoses become more frequent. Since the symptoms of autism and ASD are based on a range of behavioral indicators, diagnosis is not [&hellip;]<\/p>\n","protected":false},"author":495,"featured_media":783,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[33],"tags":[26642,2328,2595,1922,847,3069,3071],"class_list":["post-782","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-health","tag-asd","tag-autism","tag-diagnosis","tag-genetics","tag-medical-sociology","tag-medicalization","tag-medicine"],"jetpack_featured_media_url":"https:\/\/thesocietypages.org\/trot\/files\/2015\/09\/5299266366_0b6c8ae172_o.jpg","_links":{"self":[{"href":"https:\/\/thesocietypages.org\/trot\/wp-json\/wp\/v2\/posts\/782","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/thesocietypages.org\/trot\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/thesocietypages.org\/trot\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/thesocietypages.org\/trot\/wp-json\/wp\/v2\/users\/495"}],"replies":[{"embeddable":true,"href":"https:\/\/thesocietypages.org\/trot\/wp-json\/wp\/v2\/comments?post=782"}],"version-history":[{"count":2,"href":"https:\/\/thesocietypages.org\/trot\/wp-json\/wp\/v2\/posts\/782\/revisions"}],"predecessor-version":[{"id":785,"href":"https:\/\/thesocietypages.org\/trot\/wp-json\/wp\/v2\/posts\/782\/revisions\/785"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/thesocietypages.org\/trot\/wp-json\/wp\/v2\/media\/783"}],"wp:attachment":[{"href":"https:\/\/thesocietypages.org\/trot\/wp-json\/wp\/v2\/media?parent=782"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/thesocietypages.org\/trot\/wp-json\/wp\/v2\/categories?post=782"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/thesocietypages.org\/trot\/wp-json\/wp\/v2\/tags?post=782"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}